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Fight Against Sickle Cell: NDDC Joins Forces With NGO

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Fight Against Sickle Cell: NDDC Joins Forces With NGO

The Niger Delta Development Commission (NDDC) and Sickle Cell Awareness Initiative Ireland-Nigeria (SCAIIN) have launched a landmark Sickle Cell Awareness and Advocacy Flagship programme in the nine states of the region.

It was gathered that the partnership designed to promote public health, drive awareness, and mobilize resources to address sickle cell, which had become a pressing public health challenge in the Niger Delta region.

The event, which was held at the NDDC Headquarters in Port Harcourt, Rivers State, on Thursday, was designed to bridge the gap in sickle cell disease management and care.

In his remarks, the Managing Director/CEO of NDDC, Dr. Samuel Ogbuku, said that the project was a collective responsibility to promote public health, drive awareness, and mobilise resources to address sickle cell disease as a regional priority.

Ogbuku noted that sickle cell disease affects thousands of individuals and families in the Niger Delta, with many lacking access to early diagnosis, counseling, and treatment.

He said the country bore a significant burden of the disease, with approximately three perncent of the population affected and about 150,000 babies born with the condition annually.

Ogbuku said that the partnership between NDDC and SCAIIN included community outreach, genetic screening, education, blood drives, and high-level advocacy.

He explained that the initiative would save lives and lay the groundwork for long-term prevention, research, and care, assuring that the NDDC remained committed to investing in programmes that directly improved the health and wellbeing of the people of the Niger Delta.

He said: “NDDC remains committed to investing in programs that directly improve the health and wellbeing of the people of the Niger Delta. As we collaborate with our partners, healthcare providers, and the broader public, I am confident that this initiative will not only save lives but also lay the groundwork for long-term prevention, research, and care.

“On behalf of the Niger Delta Development Commission, I would like to extend my deepest gratitude to all those who have contributed to making this vision a reality. Together, we reaffirm our shared mission: to build healthier, stronger communities for today and for generations to come.”

Ogbuku expressed gratitude to all those, who had contributed to making this vision a reality, emphasising that the project was a meaningful step forward in combining community outreach, genetic screening, education, blood drives, and high-level advocacy under a comprehensive initiative.

In her address, Esther Pepple Onolememen, Clinical Psychotherapist and Founder of SCAIIN explained that the project was to address the growing burden of sickle cell disease in the Niger Delta region.

She said the initiative, supported by the NDDC, would increase awareness, provide genetic screening, train healthcare professionals, and empower families with the necessary education and tools.

Onolememen noted that the journey began nearly 25 years ago when her daughter, Reme, suffered a stroke at just eight months old due to complications from sickle cell disorder.

She said the life-altering experience sparked her advocacy work and led her to co-found SCAIIN, the Sickle Cell Society Ireland, and the Umoja Africa Sickle Cell Consortia (UMASCCO), a Pan-African platform of nearly 40 countries.

Onolememen emphasized the importance of collective action in addressing the growing burden of sickle cell disease.

She said: “We cannot ignore the statistics. We cannot ignore the stories. This must change. The NDDC’s support has been instrumental in facilitating this initiative, demonstrating the impact of institutional and community collaboration.

In his welcome address, Dr. George Uzonwanne, Director of Education, Health, and Social Services at NDDC, described the initiative as a deeply meaningful step towards restoring dignity, understanding, and hope to countless lives affected by sickle cell disease.

“Caring for people living with hereditary conditions like sickle cell disorder is not just a healthcare duty, but a moral calling”, he said.

He said the NDDC’s support for the initiative was part of its broader efforts to build a Niger Delta that heals, understands, and never leaves its own behind.

He said by working together, stakeholders could make a meaningful difference in the lives of thousands of individuals and families affected by sickle cell disease, and ultimately create a brighter future for the region.

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JUST IN: APC Releases List of Disqualified Aspirants Nationwide (FULL LIST)

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APC Schedules July 24 NEC For Ganduje Replacement

The All Progressives Congress has released a list of House of Representatives aspirants marked “not cleared” across several states, including Ondo, Bauchi, Ebonyi, Kogi and Rivers, ahead of its National Assembly primaries for the 2027 general elections.

In a statement on Saturday signed by National Publicity Secretary, Felix Morka, the list formed part of the party’s screening process, which determined eligibility for participation in the primaries across constituencies.

According to the statement, “The screening exercise was conducted by the Party’s Screening Committees in line with established procedures and guidelines.”

Here is the full list:

ONDO STATE (Not cleared aspirants)

The following aspirants were marked “not cleared”:

Hon. Adefisoye Tajudeen (Idanre/Ifedore)

Olusegun Victor Ategbole (Akoko South-East/South-West)

Seun Oluwashina Ajongbolo (Akoko South-East/South-West)

Rt. Hon. Arowole Ayodeji Samuel (Owo/Ose)

Morufu Tosin Ibrahim (Akoko North-East/North-West)

Oseni Oyeniyi (Akoko North-East/North-West)

Olaleye John Adedipe (Akoko North-East/North-West)

BAUCHI STATE

Dr. Bashir Ibrahim Bello (Darazo/Ganjuwa Federal Constituency)

EBONYI STATE

Hon. Idu Igariwe (Afikpo/Edda Federal Constituency)

KOGI STATE

Sanni Salau Ogembe (Okene/Ogori-Magongo Federal Constituency)

RIVERS STATE

Air Commodore John Azubuike Opara (rtd) (Port Harcourt Federal Constituency)

Hon. Anderson Allison Igbiki (Okrika/Ogu-Bolo Federal Constituency)

Awaji Imombek D. Abirite (Andoni/Opobo-Nkoro Federal Constituency)

Hon. Boma Goodhead (Asari-Toru/Akuku-Toru Federal Constituency)

The APC did not provide detailed explanations for the “not cleared” status of the affected aspirants.

Meanwhile, in Katsina State, the Special Assistant on Girl Child Education and Development to Governor Dikko Radda, Jamila Mani, emerged winner of the APC primary for Mani/Bindawa Federal Constituency.

In Adamawa State, the House of Representatives’ direct primaries were disrupted in several wards following the absence of officials expected to conduct the exercise. Party members in Girei, Yola North and Yola South waited for hours without official communication on commencement.

The APC primaries are part of preparations for the 2027 general elections.

 

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Senate Finally Announces Name of Proposed New State

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Tinubu Signs Bills For Gombe Special Needs College, Orthopedic Hospital

Senate President Godswill Akpabio has reaffirmed legislative and political backing for the creation of Anioma state.

Akpabio spoke on Wednesday, while addressing party members at the South-South zonal congress of the All Progressives Congress (APC) in Asaba, Delta state.

The Senate president said the President Bola Tinubu administration remains committed to the initiative.

Akpabio said Warri would serve as the capital of the new Delta state if Anioma is created.

He said Warri already has key infrastructure, including an airport, government offices, major oil companies, a seaport, and a stadium.

Governors of Delta, Edo, Bayelsa, Akwa Ibom, Rivers, and Cross River attended the congress.

Other political leaders and party stakeholders from across the south-south region were also at the event.

Akpabio described the agitation for Anioma state as historically justified, noting that the proposal reflects a long-standing aspiration rooted in equity, administrative efficiency, and balanced development.

The Senate president said the initiative, championed by Ned Nwoko, senator representing Delta North, has continued to receive legislative attention.

Akpabio added that the proposal ranks among the priorities of the 10th Senate, adding that the creation of Anioma state would come with socio-economic and administrative benefits.

The ex-Akwa Ibom governor said the restructuring would split Delta state into two viable entities and promote decentralisation.

“Anioma state will be created, with Asaba as its capital. The Senate fully supports the initiative spearheaded by Senator Ned Nwoko,” he said.

“This step will usher in a new era of development and shared prosperity for all constituent communities.

“With Asaba as Anioma state capital, Warri will be the capital of the new Delta.”

Akpabio also called for unity among the people of the South-South region.

He urged stakeholders to support the Renewed Hope Agenda of the Tinubu administration, emphasising that such support would promote sustainable growth and national integration.

In November 2025, Nwoko announced that the bid to create Anioma state has gained significant momentum, with constitutional amendment committees and Tinubu backing the endeavour.

He said 97 senators previously signed a document endorsing the move, describing the level of support as unprecedented.

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BREAKING: Dangote Refinery Sues Nigeria’s Attorney-General; Reason Emerges

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Dangote To Retire As Dangote Sugar Chair

Fresh tensions are emerging in Nigeria’s downstream oil sector as Dangote Petroleum Refinery moves to halt the continued importation of petrol into the country through a new lawsuit challenging fuel import licences granted to oil marketers and the Nigerian National Petroleum Company Limited (NNPCL).

Court documents seen by Reuters showed that the refinery instituted the suit against Nigeria’s Attorney General, seeking to overturn import permits issued by the Nigerian Midstream and Downstream Petroleum Regulatory Authority (NMDPRA).

The legal dispute comes almost a year after Dangote Refinery withdrew an earlier case that similarly challenged the issuance of fuel import licences to the NNPCL and several fuel trading firms.

In the fresh filing before the Federal High Court in Lagos, the refinery asked the court to nullify import permits recently issued or renewed by the NMDPRA, arguing that the approvals violated an existing court order directing parties to maintain the status quo pending determination of the matter.

The NMDPRA had yet to respond to requests for comments as of the time of filing this report.

Fuel marketers and regulators have repeatedly defended the continued issuance of import licences, insisting that petrol imports remain necessary to guarantee adequate supply across the country and prevent shortages in the domestic market.

Dangote Refinery, however, maintained in its court filing that the licences issued this month “undermine its operations” and violate provisions of the law which, according to the company, only permit the importation of petroleum products when local production is unable to meet national demand.

The refinery had in July 2025 discontinued a previous lawsuit challenging similar licences without publicly stating the reason for the withdrawal, leaving unresolved questions over market competition and the future structure of Nigeria’s fuel supply chain.

Nigeria has historically depended on imported petrol due to the long-standing poor performance of state-owned refineries. The Dangote Refinery, valued at about $20 billion and designed to process 650,000 barrels of crude oil per day, was expected to significantly reduce or eliminate the country’s dependence on imported refined products.

Despite the commencement of operations at the facility, fuel importation has persisted, with industry players arguing that imported products are still required to bridge supply gaps as the refinery continues to expand output.

The latest court action is likely to intensify conversations around fuel market regulation, local refining capacity and the broader implementation of Nigeria’s petroleum laws, especially amid growing expectations that domestic refineries should gradually take over the country’s fuel supply needs.

Overttime, there has been tension in the Nigerian oil sector.

SaharaReporters earlier reported that Dangote Petroleum Refinery accused Nigerian upstream oil producers of failing to supply crude oil to the facility as required under the country’s petroleum law, forcing the refinery to rely heavily on international traders who charge additional premiums.

In a statement issued by its management, the refinery said the situation has significantly increased operational costs, even as it struggles to maintain stable fuel supply in Nigeria amid global energy market volatility.

“The high crude cost is compounded by the fact that Nigeria’s upstream producers have failed to supply crude oil to the refinery as required under the PIA, forcing us to source a substantial portion through international traders who charge an additional premium,” the company said.

The refinery explained that the situation has made crude procurement more expensive, particularly because Nigerian crude oil itself trades at a premium above global benchmark prices.

 

-Source: SaharaReporters

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